Summer Camps for Special Needs Kids

Has your special needs kid ever gone to summer camp? Where and how did it go?

Aside from VBS at local churches, my special needs daughter has never been to a summer camp. I guess I’ve always been a little afraid to leave her with people I don’t know, and honestly most places aren’t equipped to work with complicated special needs kids. V is blind, non-verbal, non-ambulatory and has muscle conditions that sometimes make it hard for her to sit in her wheelchair for very long. I would like this summer to be different – it’s time for V to spread her wings and have some fun on her own!

I’m working on a list of summer camps, please post any camps that you know about and you and your child’s experiences. Here’s what I have so far:

Seattle, Washington

San Diego, California
San Diego is beautiful and a popular vacation destination, but did you know they are one of the most accessible cities in the US? Most attractions like the San Diego Zoo, Safari Park and SeaWorld have a Access Two for One, which means you get in free as your disabled child’s helper/attendant. Plus there are free beach wheelchairs on many San Diego beaches, and long paved boardwalks.

San Diego Zoo and San Diego Zoo Safari Park
One of my family’s favorite places to visit! A reader told me that her child has been to summer camp at the San Diego Zoo for the last 3 years. She hired an assistant for her child and the zoo made sure it was a great experience. The camps look so fun!

Park City, Utah

National Ability Center
It’s not a secret that I love this organization – they are AWESOME! When we visited last winter we found out about their summer camps:

Multiple States

Posted in Solutions | Leave a comment

What Makes You Fear Less?


Earlier this week I was asked to write an article for TravelingMom.com about being fearless – or fear less. I wrote from a travel perspective, but have been thinking about the most intense fear I have ever experience, which was when Veronica was born.

We knew Veronica was going to be a small baby, although nobody knew why. We had numerous ultrasounds and tests and she looked healthy, just little. She moved less than my oldest did when I was carrying her, but her sister was a maniac; always moving in utero and didn’t slow down after she popped out, so I told myself Veronica’s movements were how babies were supposed to be. That she was a mellow baby and would sleep better than her sister did. He sister’s sleeplessness seemed so exhausting at the time, I had no idea what exhausting really even meant.

At 1:00am the morning after my due date I felt like I was in labor and checked in to the hospital. They hooked me up and monitored my contractions, telling me I wasn’t really in labor and could go home. I had precipitous labor with my first born and my doctor told me if I even thought I was in labor that I should go to the hospital. I told the nurse this, she replied, “If it makes you feel better you can stay, but you’re not in labor.” Whatever. I was staying, and climbed right in to the jacuzzi tub.

An hour later I told my husband I felt like I wanted to push. He went and got the nurse, who rolled her eyes and checked my progression. She suddenly looked panicked, “The baby’s on her way, get out of the tub, on the bed and don’t push. I’m getting the doctor.”

Don’t push? My body was doing what a body does in labor and a couple of minutes later my husband delivered my sweet little girl and placed her on my chest. The doctor walked in and joked how we didn’t need him any more and the nurses started to take care of Veronica. I heard them with the Apgar scores and knew that they were being generous as they tried to get her to respond more. I pushed those thoughts out of my mind and looked forward to holding my baby again. It turned out she needed oxygen and they escorted V to the NICU carried by her daddy. As soon as I could, I went to see her. Such a tiny thing, 5″13oz. She was in an isolette next to a 10lb baby, which made her seem even smaller.

By the next morning it was clear that something was wrong. Veronica had red marks on her face and head, kind of like stork bites but darker. Her body was slightly asymmetrical, including her ears. She wasn’t getting enough oxygen and she hadn’t opened her eyes. Tests were ordered for a CT, they thought she had part of her brain missing or malformed. A specialist was called to check her eyes, and we were told she was blind and would never see.

I cried – no I bawled. My whole body was seized by this emotion of fear for my new little baby, who I was already so in love with. I remember being in my hospital bed turning from side to side, as if I could find a way to be comfortable with this news.

We were transported to a hospital with more specialized support, and more tests were run, including a hearing test. Veronica failed. We were handled a brochure and told to have her retested with a BAER test when she was 10 months old. We asked if maybe there was fluid in her ears. “No, just read the brochure.” Thanks for that.

I felt like my heart and soul had been ripped out of me. My husband took Veronica back to the NICU and I went to our hospital room where I took a shower and cried at the top of my lungs. I asked God how V would know I loved her if she couldn’t hear me, what the future held for my baby, and how I was going to be a good mom for her. I was terrified and hurt to the core.

I got dressed, walked back to the NICU and picked up my little girl. I held her beautiful hand and snuggled her soft head. And then it hit me, I just needed to love her. I thought about how my husband and I were able to work from home and had great medical coverage and how God was taking care of us. I just needed to keep moving forward. God has a plan for everyone, including me and my new baby.

That night Todd and I were in the NICU with V, she had just fallen asleep when a dad across the room sneezed. Veronica flinched. She could hear it! The next morning our geneticist was making rounds. She was a older German woman, with a heavy accent and years of practical experience. We told her about the hearing test and how V responded to the noise the night prior. She clapped her hands over Veronica and Veronica startled. “Oh! All these expensive tests, clearly this child can hear,” she said.

The next 2 weeks in the hospital were spent with tests during the day, the results, and a new frightening theory on what Veronica was facing when doctors had rounds before they went home. Finally, my husband asked what it would take for us to go home. I was terrified of that prospect, but the stress of the hospital was not good for anyone and V only needed a small amount of oxygen, so after CPR training and learning how to use portable oxygen tanks we took her home. It was the best decision. With no scary news and invasive tests we could start to breathe again and began living this new life as a family. One day at a time.

So, what’s your story? What makes you fear less? Happy early Mother’s Day to all you fearless moms, you are amazing!

Posted in Thoughts | Leave a comment

What Does a Mom Do on a Vacation Alone? Find adventure!

Orlando adventuresRecently I had an opportunity to take the Disney Fantasy Preview Cruise with TravelingMom.com, and since I was flying from one corner of the country to the other I thought I’d make the most of my stay and go a couple of days early. My friend Kim-Marie and I made some plans for big adventures in Orlando – this is what happens when I get a chance to get out of the house on my own. I was looking forward to full nights of sleep and exploring things to do in Orlando outside of the theme parks. VisitOrlando set us up with some wild adventures and a stay at The Ritz-Carlton Orlando, Grande Lakes – we were ready to go. My husband and mom are awesome, they took care of things at home so that I could have this rare time away.

The more Kim-Marie and I talked about adventures in Orlando, the more daring our ideas became. What started out with an idea to try indoor simulated skydiving turned into actual hang gliding. By the time plans we made, in addition to hang gliding, we were set to race Nascar like Ricky Bobby and take an air tour where you actually got to fly the plane. There was safety in numbers, somehow these seemed completely possible and a total blast with my good friend.

And then I got a phone call a week before the trip. Kim-Marie had a gallbladder attack and ended up having emergency surgery. She was still coming to Orlando, but wouldn’t be able do these activities with me – I was on my own. My first concern was for my friend, I just wanted her to be OK and was excited to spend some time with her, even if it was just relaxing by the pool. But then I realized I was literally flying solo on these activities, and not sure I had the nerve to follow through. Suddenly these things seemed more scary than fun.

Finally the day had come and it was time to head to Orlando. After a LONG flight, I picked up my rental car and made my way to the The Ritz-Carlton Grande Lakes, just 10 minutes away. I was so tired and grimy from the flight that I couldn’t fully appreciate the amenities and luxury of the Ritz until I had a shower and walked on the balcony overlooking the property. It was gorgeous! I breathed in and filled my lungs with the tropically scented air and just relaxed. Finally.

Orlando Ritz Grande Lakes

But what to do now? I could just climb in that big comfy bed and sleep for 12 hours, that sounded great! A rare luxury for any mom, especially one with a special needs kid. I honestly could have spent the next two days in my beautiful room or by the pool, relaxing by myself for the first time in 12 years. But the more I thought about it, the more I realized it was good for me to get out. For almost half of the last year – over 5 months – I wasn’t hardly able to leave the house. Veronica was medically fragile and in a lot of pain, with no certain prognosis, and I battled with a chronic disease flared up from stress. I decided it was time to push myself to get out and take on new, fun things. So I got dressed up and explored the grounds of The Ritz-Carlton Grande Lakes; the pool, trails, restaurants. I felt myself relax like I hadn’t in such a long time. It felt so good. I went back to my room for a fantastic, incredible, full night of sleep.

The next morning I went for a run/walk around The Ritz and JW Marriott Grande Lakes property to explore a bit, then drove to the airport and picked Kim-Marie up. We came back for a yummy brunch on the veranda of the Ritz at the Vineyard Grill. We were so hungry and everything looked so good – AND they had gluten-free options for anything I wanted. Sitting in the warm tropical air catching up with my good friend was heaven.

The Adventures Begin

Mauiva Air Tours Orlando

After brunch it was time to head out for my first adventure – a Mauiva Air Tour of Orlando. I’ve been in a small plane before, but it’s been years. I wasn’t sure I was up for it. It was windy and I was thinking about how much I would have enjoyed resting by the pool. But once we got off the ground I was hooked. I loved seeing the theme parks from a bird’s eye view; watching the orca at SeaWorld, seeing the masses of people at Harry Potter Universal. Part way through the flight it was my turn to try flying the plane. OK, that was a trip. I was pretty nervous about it, knowing that I could send the plane plummeting freaked me out a bit. I did it, but I’m probably not meant to be a pilot. But never say never, right? Read about my full experience and see photos in my TraveingMom.com article.

Orlando adventures

My day wasn’t over yet, next up, Nascar ride along at Richard Petty Driving. I arrived at the race track, got suited up and went for a 3-lap ride with a professional driver at speeds around 130mph – just slightly faster than I drive carpool. Your kids would love this – I suggest parents try the driving experience, that’s what I thought I was signed up for. (I’m working on a full review, coming tomorrow.)

After an exciting day I headed back to the Ritz where KM and I ordered room service and watched movies. A hot shower and restful night of sleep – I was feeling really spoiled.

Seriously, I’m Really Going to Do That? Am I crazy? Maybe.

The next day we had hang gliding scheduled. This seemed like a good idea at the time, now I was wondering if I was insane. My alarm clock didn’t go off, so I slept in a little late – maybe this was God’s way of telling me I shouldn’t go? I called Malcolm at Wallaby Ranch to see if I could still hang glide, or if it was too late and he didn’t answer. Yep, now I’m sure of it, God was telling me not to go. Then Malcolm called me back. He said conditions were perfect, but not for long, to get out there if I wanted to hang glide today. Thinking about several reasons why I couldn’t or shouldn’t do this, I got dressed and was on my way. I was going. Wallaby Ranch has been doing this a long time and has a stellar safety rating, so I knew I was in good hands, but would I freak out once I got in the air? I guess that wouldn’t be an option. As it turned out it was an AMAZING experience. So liberating. Read about my full experience on TravelingMom.com – including video. After my flight I spent some time hanging out with long time hang gliding enthusiasts; I loved their stories and life experiences. What a wonderful group of people, I could have stayed there all day.

But my time was up and I was off to my next adventure – Spa experience at the Ritz Grande Lakes with my TravelingMom.com friends. Kind of a contrast to my morning! I got back and enjoyed a mani pedi and delicious foods and healthy smoothies, catching up with a group of amazing travel friends, relaxing. Meanwhile, we had an opportunity to hear more about the wonderful spa treatments at The Ritz Spa, and heard from the bee keeper – yes bee keeper. It turns out The Ritz and JW Marriott Grande Lakes have honey bee hives that they manage on property. The honey is used in signature dishes in their world-class restaurants, as well as in some of their spa treatments. My friend wrote a great article about this for TravelingMom.com. I’ll be posting more details of my own tomorrow.

The end of the spa experience marked the end of my stay at the Ritz and my solo adventures. Next stop – Disney Fantasy cruise! I left this phase of my trip with a new sense of empowerment and finally something to talk about other than doctors, therapies, and medical equipment. I felt like the real me was finally emerging again – it had been so long.

Disclaimer: These experiences were provided to me to review at the invitation of VisitOrlando, the opinions are my own.

Posted in Do, Orlando, Thoughts | Tagged , , , | 2 Comments

Hang Gliding in Orlando


Moms need adventure, too! Watch the video to see me hang glide – it was so much fun and really liberating. Wallaby Ranch has been doing this a long time, they have a perfect safety record and are a great group to spend some time with. They take have worked with kids as young as 3 and people with disabilities. They said there’s only been one person that they had to refuse a flight to because of safety concerns, a man who was quadriplegic and had no neck control. For this same reason this is not something that I would have Veronica do (although she’d love it), but I would bring her while my older daughter and husband went – she would love the atmosphere of the ranch. Read about my adventure hang gliding at Wallaby Ranch on TravelingMom.com.

Posted in Do, Orlando, TravelingMom.com | Tagged , , , , | Leave a comment

Disney Fantasy Cruise: AquaDuck Waterslide

Aqua Duck Disney Fantasy cruise water slide

One of the things people asked me to check out on the Disney Fantasy was the AquaDuck water slide, and I couldn’t wait to oblige. I’ve always loved water slides, but I was especially interested to see what this one was like and if my special needs kid would be able to enjoy it. After my experience I think my child would have a blast. Unlike many water slides, you can ride double, which is great because my child cannot sit independently. It’s got great movement, but it’s not too fast or deep, and the “landing” is easy, no dumping into a pool. One note, children must be 42 inches or taller to go on the AquaDuck, my child meets that criteria, but take that into consideration before you tell your kid about how much fun it will be. There’s nothing worse than building up expectations for something that’s out of reach. But don’t just take my word for it, see for yourself. Join me on my AquaDuck adventure – and try to ignore the uh, awkward camera angle, not real glamorous – whatever. I guess it’s the price I’m willing to pay for journalism – ha!

Posted in Disney Fantasy Cruise | Leave a comment

Friday Night Pizza Recipe

Friday night family pizza recipe
Our family’s Friday night favorite is homemade pizza and movies, and we have our pizza recipe down to a science. It’s fast and delicious – I hope your family loves it, too!

In the bowl of your KichenAid mixer add:

3 1/2 c. flour
2 tsp salt

In a glass bowl add:

2 tbl olive oil
1 1/4 c. warm water (about 105 degrees)
1 pkg active dry yeast
2 tbl honey or agave

Let the yeast mixture sit for a few minutes until bubbly, then add it to your flour mixture and combine using the dough hook. Let it run on medium for several minutes – it should be combined and form a ball. Drizzle with olive oil, flip over, cover with a towel and let rise for 30-45 minutes. It should be soft and spongy. We make this often, sometimes we let it rise longer, closer to an hour, because we have a lot going on and sometimes just 30 minutes. Either way it turns out good.

Family night pizza dough recipe

While the dough is rising, turn on the oven to 450 degrees, put in your pizza stones, and start prepping the toppings. We like combinations of marinara sauce, pesto, olives, veggies, pepperoni, Canadian bacon, some in our family like pineapple, mozzerella cheese, fresh mozzerrella, parmesan cheese, fresh basil and herbs.

We love using our pizza stones and think that they make the best pizza. We preheat them while the dough is rising, roll out our dough, then place the dough on the hot pizza stone, add the toppings and then bake. If you have little kids, you might want to use the pizza stones cold or use baking sheets. Baking time will depend on whether you use a baking sheet or hot pizza stone, we bake ours for about 8 minutes. When the cheese is golden and bubbly, they are done. Enjoy!

Posted in Recipes | Tagged , , | 2 Comments

Disney Fantasy Cruise – Animator’s Palate

Disney cruise family vacation - Animator's Palate restaurant

Family dinner at Animator’s Palate aboard the Disney “Fantasy” cruise ship takes on a whole new level of fun. Leave it to Disney to create an experience that allows you to become an animator, they put the animations together for your dining entertainment.

The Disney Animator’s Palate is decorated with full-on Disney detail at every level:

Disney crusie family vacations - Animator's Palate

After being seated, you are given a placemat and a marker, with brief instructions about drawing yourself inside the lines:

Animator's Palate Disney cruise family vacation

You and your family draw yourselves and your server collects your art work – like my hair?

Animator's Palate family dinner on Disney cruise

Later, your dinner is accompanied by a show, featuring your animation, see if you can find me and my green hair:


And Disney animation (wish my video was better here, but it gives you the idea):


This was so much fun – loved it!

Here’s my write up for TravelingMom.com


Disclaimer – Disney hosted me on the Disney Fantasy Inaugural Preview Cruise, but the opinions and experiences are my own.

Posted in Disney Fantasy Cruise | Tagged , , , | Leave a comment

Verizon HTC Rhyme

Only two weeks ago I was on the Disney Fantasy Preview Cruise with blogger friends from TravelingMom.com. On the cruise Verizon gave each of us TravelingMoms an HTC Rhyme to use and review. Professional travel photographer and fellow TravelingMom Kymri Wilt shared photography secrets and helped us learn how to use the many photo features on our Rhyme phones. The HTC Rhyme quickly became my go-to camera for the rest of the cruise, here are some reasons why.

Brilliant photo color and clarity:

I ♥ Goofy!

Fun photo effects that are easy to use:

travel photos

Coffee is always a meeting essential.

Panoramic shots that are no brainers:

So easy, the Rhyme does all the work!

Obviously the Verizon HTC Rhyme is a phone first, and as soon as I walked in the door my 15 year old had it out and was making calls, sending texts and using it as a wireless hotspot for her iPad. It passed the teen test.

I came home home to a sick child who ended up being hospitalized for 5 days, and is home now but still on the mend. A long way from the Bahamas to be sure! Looking at the photos I took with an HTC Rhyme phone reminds me that the trip was not just a good dream. I can almost feel the warm tropical breeze…almost.

Posted in Equipment, Reviews | Leave a comment

Seattle for young kids

Thigs to do for young kids in SeattleSeattle is great for families with plenty of kid-friendly attractions, from the Museum of Flight to the Science Center. For outdoor activities, Greenlake Park can’t be beat.

See my list of things to do in Seattle with young kids on TripAdvisor.com

Good for: Families, Groups, Seniors, Individuals
Seasons: Spring, Summer, Fall, Winter

Posted in Do, Seattle, TripAdvisor.com | Tagged , | Leave a comment

Seattle off the Beaten Path

Seattle family travel off the beaten pathSee the troll under the bridge in funky Fremont, celebrate Seattle’s maritime history at the Center for Wooden Boats and more. Discover Seattle off the beaten path.

See my list of things to do off the beaten path in Seattle on TripAdvisor.com

Good for: Families, Groups, Seniors, Individuals
Seasons: Spring, Summer, Fall, Winter

Posted in Do, Seattle, TripAdvisor.com | Tagged , , | Leave a comment