Memory Monday : The Best is Yet to Come

Part of a series telling Veronica’s story.  I’ve previously written about Veronica’s first day, the first steps in a quest for answers, and going home. After my daughter was born, the quest for answers began. Her life in the NICU was filled with tests and scary prognoses, and as soon as she was stable enough […]

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Impossible Decisions

Impossible decisions. Parents of a special needs child are faced with more than their fair share of them.
Medications with horrible side effects that may not work, risky surgeries with uncertain outcomes, expensive alternative therapies on the quest to find answers for their child – these are just a few examples.

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Going Home

Part of a series telling Veronica’s story.  I’ve previously written about Veronica’s first day, and the first steps in a quest for answers. Veronica spent the first 12 days of her life in the NICU, every morning beginning with new specialists discussing new theories, running new tests.   Every night ending with the NICU doctor […]

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After the First 12 Hours – The Search for Answers

Last Monday I wrote about Veronica’s first day – or at least the first 12 hours.  By mid-day it was clear that the delivery hospital was not equipped for Veronica’s needs. In addition to requiring oxygen and an extremely rare eye condition, everything on her body was a little asymmetrical.  One ear looked a little […]

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Veronica’s First Day – Welcome little one!

I feel like it’s time to tell the Veronica’s story.  It’s been a long road and I like to stay in the present, not look too far in the future or past.  I stay focused on what I know for sure; that I have an incredible, beautiful, funny, amazing little girl who touches my life […]

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Favorite Gifts from Christmases Past

I’ve been working on V’s Christmas list, I know everyone’s going to be asking for it on Thanksgiving, but it’s always so tough.  She has specific physical limitations and can’t tell me what she wants, so it becomes an educated guessing game. I have boxes of stuff from years past that we bought in hopes […]

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A song for Veronica

I just got a phone call from the principal of my older daughter’s school.  He and his brother have been so inspired by the light that is Veronica that they wrote a song for her and posted it on YouTube.  I cried, Veronica smiled and laughed.  It’s just so sweet that she’s left such an […]

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Ebenezer Stones

In the Old Testament of the Bible, Ebenezer Stones were marker stones raised after a great victory, saying, “Thus far the LORD has helped us.” For me, it is a symbol of gratitude and thanksgiving, knowing that I am not alone as I travel this some times difficult road. Five months ago my daughter Veronica […]

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Ode to my iPod

Oh iPod, iPod, how do I love thee, let me count the ways.  I love the virtually endless “Long Night” playlist of songs and stories for the nights Veronica thinks it’s day time.  I love how you can drown out new noises and make Veronica feel like she’s at home, whether we’re in a hotel […]

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